Personal Stories

At the age of 39 I decided to have a baby on my own (with the support of my loving family). For the first 20 weeks of my pregnancy, things were relatively easy. At my 20-week anatomy scan (with my mother and grandmother beside me), I was informed by the doctor that my...

Our journey started at our 20 week ultrasound where we were told our daughter had CDH. We were absolutely devastated.  We immediately did some research and learned all we could about CDH.  We were trying to save money knowing that it would be tight financially...

Alanna has been through a lot for a 2½-year-old.  She became a Boston Children’s patient at 22 weeks in utero and was born prematurely at 35 weeks with omphalocele, a birth defect of the abdominal wall. Under the care of Dr. Terry Buchmiller, she underwent surgery at...

My name is Natalie Eyler and my daughter, Anastasia, was born with CDH.She turns five in March and shows time and again what a survivor she is. One of her ongoing troubles is with eating. She has been fed via G-tube since she was three months old. Fortunately, there...

We live on Martha’s Vineyard, Mass and found out our son, Nico, had right-sided CDH at our 20 week anatomy scan. The rural hospital we live near didn’t want me to deliver there due to my daughter being born prematurely (33 weeks) and to the special needs of Nico at...

Today I would like to tell you a little about my daughter's journey with CDH and the support from the Incredibly Teddy Foundation. After years of trying to conceive my 2nd child, with several miscarriages and 2 rounds of IVF, I received the amazing news that I was...