Personal Stories
Nico’s Story
We live on Martha’s Vineyard, Mass and found out our son, Nico, had right-sided CDH at our 20 week anatomy scan. The rural hospital we live near didn’t want me to deliver there due to my daughter being born prematurely (33 weeks) and to the special needs of Nico at...
Leila’s Journey With CDH
Today I would like to tell you a little about my daughter's journey with CDH and the support from the Incredibly Teddy Foundation. After years of trying to conceive my 2nd child, with several miscarriages and 2 rounds of IVF, I received the amazing news that I was...
Share Your Story
It’s important for families affected by CDH to know that they are not alone. Sharing a story about your personal experiences can help in your own journey as well as provide encouragement and support to others with similar experiences.